Frontal Temporal Dementia - FTD - Formerly Orthomolecular Schizophrenia Protocol

One Patient's story of non clinical and clinical diagnosis of Schizophrenic like symptoms, attempts at vitamin therapy approach, seizure activity present. We searched for answers & much of our research was beneficial in chronological context. Taken out of context, the information may not provide an accurate understanding/solution. Psychiatric illness was ruled out. This blog indicates how we arrived @ the current treatment -vitamin therapy. Diagnosis given: Fronto-temporal dementia.

Tuesday, May 1, 2007

Time for a Specialist

As a result of our in depth research coupled with our understanding of the Patient and medical history, we are dissatisfied and frustrated with the current situation and how the doctors have handled Patient. We feel as though the doctors have only scratched the surface and have shown little concern or desire to dig deeper and consider other angles.

Based on Patient's unique symptoms and poor response to medications prescribed up to this point, and nothing hopeful from Patient's doctors, we have reached a point of frustration. it appears we've exhausted our options locally with respect to finding a Physician with expertise in dealing with Patient's unique blend of symptoms. Considering the delicate nature of the situation with respect to potential damage occurring from taking wrong medications, we cannot afford to keep Patient on current medication for psychosis for long when we know Patient's seizures aren't being addressed and cognitive abilities are being strongly compromised by the current drug.

We need to find a doctor as soon as possible who can help transition Patient off of the risky medication currently being used for psychiatric treatment.
At this point we feel it would be beneficial to find a Specialist familiar with the connections between Neurology and Psychiatry. We are looking into brain doctors with experience dealing with people suffering from similar problems as Patient (those dealing with patients whose case has been passed back and forth between neurologist and psychiatrist). We will be in contact with the insurance company to determine if two doctors in consideration participate with Patient's insurance. Depending on results we may need to perform further research to find a few more Specialists that deal with seizure patients with psychosis. We are open to recommendations. Please comment with known name of doctor practicing in this field of medicine.

CRITICAL INFORMATION ABOUT SEIZURES WITH PSYCHOSIS SYMPTOMS AND RISK OF MIS-DIAGNOSIS:
http://www.psychiatrictimes.com/p950927.html

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LOW HISTAMINE

This LOW HISTAMINE schizophrenia supplement schedule was developed to improve the quality of life of our family member-referred to as Patient. Once the FTD diagnosis was agreed, the patient was in late stages and soon hospitalized. The only supplement that was to have significant impact on FTD was DHEA in the early stages. THIS is not a recommendation and we make no claims this protocol will work for you. Always check with a qualified Doctor when making changes to your recovery protocols.
100mg L-Carnosine AM - scavenger of oxidative stress (ROS & alpha-beta unsaturated aldehydes), improves processes affected with autisim, found highly concentrated in muscle and brain tissue, quickly metabolizes blood levels of stress produced Cortisol returning levels to normal, too much Carnosine may cause hyperactivity.
100mg R-ALA (RLA) PM - Powerful antioxidant, reverse cognitive dysfunction, increases glutathione, "recycles" other key antioxidants such as vitamin C, vitamin E, and glutathione, promotes glucose metabolism, proven effective for treating diabetic neuropathy, prevents nerve damage from oxidation.
2mg Melatonin PM-ONLY - counteracts TD, Improves sleep quality of chronic schizophrenia patients, suppresses prolactin release, necessary for SWS-REM sleep, stimulates endorphin production (updated from 1mg 12-9-06)
5mg DHEA AM Androgen occurring naturally in humans and synthesized from cholesterol. 5mg maintenance dose-no higher. Patient responded to larger 50mg dose in the past but then had significant side effects. Goal is to balance or restore normal level. Body does not upregulate its own levels when taken orally, so max total levels should not exceed natural 15 mg in body daily.
100mg CoQ10 AM Many useful antioxidant activities especially Schizophrenia, neuroprotective effects, potent free radical scavenger in lipid and mitochondrial membranes (increased from 30mg on 2-15-07)
800mg EPA-protein AM Balance with DHA
200mg Vitamin B6 Pyridoxine AM Counteracts Kryptopyrrole, break down and use fats, proteins, and carbohydrates, to make red blood cells and antibodies, to help the digestive and nervous systems function, maintain healthy skin. Converts to coenzyme P5P in body
800mg DHA-protein AM Balance with EPA
500mg per meal Vitamin B3 Niacin (no flush-slow release) AM Opens Capillaries, take after each meal, Removes voices, Needed for Omega EFA conversions to prostaglandins.
50-80mg Zinc AM Positive Factor for TD, inverse of Copper, Works closely with B6, promotes normal metallothionein, commonly out of balance with Copper
200mcg-600mcg Selenium AM Antidote for Mercury, Antioxidant, Antidepressant, Improves Prostaglandins
30mg Chelated Manganese PM Prevents Tardive (TD), increases elimination of copper and helps return copper levels to normal. Do not take with Calcium.
5,000mcg Vitamin B12 AM Improves RBC flow through Capillaries
|AVOID| 200mg SAM-e (S-adenosylmethionine) Treats Undermethylation, was tested on this Patient and did not respond well, maintains cell membrane structure, substances vital to transmitting nerve impluses that influence mood and emotion
|AVOID| 100mg L-Theanine - inhibits glutamic acid excitotoxicity, promotes GABA production, decreases serotonin and increases dopamine (BAD FOR PATIENT), promotes alpha wave production associated with alert relaxation (non drowsy), improves immune system response by boosting capacity of T cells, crosses blood brain barrier.
Exercise & Diet - 30 minutes of walking per day