FTD Genetics: http://www.ftd-picks.org/?p=learnmore.genetics
Genetic Defects for some cases of FTD: PGRN, MAPT: http://www.ftd-picks.org/?p=research/200608_ResearchAdvance
Monday, April 13, 2009
Thursday, March 26, 2009
Patient Update March 26, 2009
This will be a brief update to be followed by more detail soon.
Patient is recovering on a ventilator for more than 90 days now. Recently began using eyes. After the 1st 40 days of Patient being on anticonvulsants, they were discontinued at the request of the Family because the progress had not changed. At day 80 (approx.) Patient was said to not be responding (no brain activity) when tested while still (mistakenly) prescribed anti-convulsants during a recent week long hospital visit. But in the weeks before and after the anticonvulsants there are signs of progress. It was the opinion of the ICU neurologist that anticonvulsants were required despite no seizures EVER being recorded or witnessed while Patient is lying in bed. What impact has this had on the recovery of the Patient. We can prove it caused SEVERELY delayed recovery, which for many families in this situation, would have convinced your family members to listen to doctors and to turn off the machines. more to come....
Patient is recovering on a ventilator for more than 90 days now. Recently began using eyes. After the 1st 40 days of Patient being on anticonvulsants, they were discontinued at the request of the Family because the progress had not changed. At day 80 (approx.) Patient was said to not be responding (no brain activity) when tested while still (mistakenly) prescribed anti-convulsants during a recent week long hospital visit. But in the weeks before and after the anticonvulsants there are signs of progress. It was the opinion of the ICU neurologist that anticonvulsants were required despite no seizures EVER being recorded or witnessed while Patient is lying in bed. What impact has this had on the recovery of the Patient. We can prove it caused SEVERELY delayed recovery, which for many families in this situation, would have convinced your family members to listen to doctors and to turn off the machines. more to come....
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